Friday, October 14, 2011
Time seems to fly by and we apologize for taking so long to update. Clay underwent surgery on Thursday September 29th. This was the procedure that was canceled earlier in the month. The doctor worked on his hand , mouth, neck, and head. At this point he is back in school and seems to be doing fine. The second graders have a competition for UIL story telling. Clay is trying out for the team. I bet if he could tell about his life experiences he has more than the average second grader to draw from. He is excited about this opportunity. He will go back to Dallas on the 17th of this month for his first injection into the scalp expander. The doctor plans to put 400 to 450 cc of fluid in between now and Christmas. The next surgical procedure will be to move the existing hair around on his head. I hope this short note finds everyone well. We are thankful to all who pray for and encourage Clay and our family. Take Care
Tuesday, September 13, 2011
Friday, August 26, 2011
Hello to all! Once again, we haven't posted an update for quite awhile. Now that school has started, we may have more time to post. The boys had an nice summer. Clay's favorite activity was swimming. We are in a severe drought along with temperatures in the triple digits; so, Clay did most of his swimming in the late afternoon/evening hours. We spent some time on the coast in South Texas at Pappy & Grandma's. We enjoyed our church convention in July. The boys also enjoyed the show/musical "Texas" (Palo Duro Canyon State Park) with family and friends. They thought it was really cool that one of their cousins was part of the show this summer. We escaped the heat, for a little while, with a trip to Colorado; and, enjoyed our time with my sister & her family.
Carson is in the 7th grade this year, Cody 4th grade, and Clay 2nd grade. They have enjoyed their first week of school; although, Cody is our little "homebody" and would rather be at home than at school. Clay came home the first day of school and said "I love school"! Clay's next surgery is scheduled for Sept 12. Dr. Trussler will place a tissue expander under the little bit of hair on Clay's scalp. As we begin to fill this expander and it gets larger, we are thinking of different types of hats that he might be able to wear during this time. Dr. Trussler will also perform surgery on Clay's left hand and do some work around his mouth/lips.
Clay's attitude towards life continues to teach us so much. We were at a 4-H event a few weeks ago, and a family sat down across the table from us. The minute their child saw Clay, this child wanted to leave the table. With what ensued after that, I was on the verge of tears. I told Chance that I needed to go sit in the car until I stopped crying. I cried harder when Clay patted my arm and said "It'll be ok, mom". When Carson asked why mom was crying, Clay answered "She's crying because a kid thought that I was scary". Here's Clay who has been through so much and who's appearance is changed forever; yet, he was the one comforting us. We have prayed earnestly that God would "keep" him through all that he will face in future days. This strength that he has, only comes from God. So thankful for God's presence.
Clay was swinging with his cousin this summer, and a girl jumped off the swing beside them and said "I can't swing with burned kids". Clay walked away with his head down; but, a few minutes later he was playing again. Our cousin told us about this incident days later. So thankful for Clay's resilience and kindness. I pray that any unkind words, comments, stares, or unkindness from others would never squelch his spirit. We are thankful for the many who see Clay for the person he is, along with his big heart.
I am posting a picture of Clay with some frogs he shot. There was a silent auction at one of our recent 4-H fundraisers. Clay saw a rifle in the auction he thought he had to have. He was pulling on Chance's arm saying "Please (bid)write my name down, dad". Chance's response was "Son, I'm not going to pay that for the rifle". When Clay heard the announcement that the silent auction was over, he put his head down and cried. Three men from Graham, TX purchased the rifle for Clay. They noticed how much Clay wanted the rifle and made sure they secured the bid. They brought the rifle to our table and sat it in front of Clay. Clay raised his head and quickly dried his tears. All the way home we heard from the boys in the back seats; "Dad, can we shoot the rifle when we get home? Dad, can we look at it again before you put it up? Dad, can we shoot a deer? Dad, can we go rabbit hunting? Dad, will you take us hunting tomorrow? Dad...Dad....Dad....". Chance took Cody & Clay (Carson was busy) to the tank (pond) in the back pasture and the picture shows the frogs they got with dad's help. They were able to sneak upon a rabbit too. No, we did not have frog legs for supper. :)
Children's Medical Center's Plastic Surgery Department has asked if Clay would be one of their co-captains for Children's Red Balloon Run & Relay in October. The name of the team is "Fantastico Plastico". If any in the Dallas area are interested in the run/relay, we'd love for you to be a part of our team. 100% of the proceeds raised by the team will benefit Children's Medical Center's Plastic Surgery Department. redballoonevent.org
I did not intend for this to be so long. Hope all is well with each one of you. Thanks again for your care. ~The Fite Family (Chance, Deidra, Carson, Cody, & Clay)
Monday, June 6, 2011
Clay has been wanting to play baseball all year; so, Chance coached his baseball team this past Spring. Clay was named the best "one-handed batter" on the team. We had a special glove made for him at the Nokona glove factory in Nocona, Texas. It has a special sleeve that he wraps around his forearm to keep the glove on. Carson & Cody played baseball too & enjoyed it. I'll post some pictures of the baseball trio.
Thursday, March 24, 2011
Good morning! Just thought I would give a quick update. I have posted a picture of Clay's neck. As you recall, this was his most extensive surgery (Dec.). The contracting burn scars had caused his chin to contract to his chest. Looking at the picture, you will be able to see how much his neck released. This skin flap was taken from his right thigh and and surgically attached to blood vessels in his neck. It has healed really well.
The boys had their Spring Break last week & we went South (to the coast) so they could see their grandparents & go to the beach. Chance, Carson, & Cody were at the Houston stock show the week before Spring Break (this was the last stock show for us this year). Carson's steer made the sale. Cody was in tears when he realized that he would not be able to bring his steer back home, but would have to say goodbye to him. Chance brought some calves from the back pasture to the barn; the boys will start working with these calves to get them gentle for next year.
Clay has another appointment next week with his doctor. At this time, we will plan his next surgery & he will be fitted with a mouth splint. It will be necessary for him to wear this splint to prevent the corners of his mouth from contracting again.
In our last blog entry, we mentioned that Clay bought 2 baby chicks. Well, those baby chicks are not so tiny anymore and outgrew their box really fast. Chance may be forced to build a chicken coop soon. :) No more "cute, fuzzy, soft" chicks.....now it is "scratch, peck, & run" when the boys try to pick them up. We hope you all have a wonderful day! Thanks again for your care! Love from the Fite Family (Chance, Deidra, Carson, Cody, & Clay)
Monday, February 21, 2011
Carson & Cody did not make the sale at the Ft. Worth or San Antonio stock shows with their steers. Looks like they will be taking their steers to the Houston stock show(in March). We also have 2 new additions to our 'animal farm'. Clay bought 2 baby chicks at the feed store a few days ago. The boys named them but I forgot the names-I'll have to ask again when they get home from school. The chicks were the last thing we needed, but they are really cute.
Cody will turn 9 yrs. old this Wednesday (23rd).
Thanks again for all! Love from the Fites (Chance, Deidra, Carson, Cody, & Clay)
Friday, January 21, 2011
Clay will have a documented sleep study within the next month or so. His next surgery is tentatively scheduled for mid to late February. The ENT doctors want to take Clay to O.R. & scope his airway (under anesthesia). If all looks good in the O.R., they will take Clay's tracheostomy tube out & then keep him in the hospital for a few days to monitor him. Clay's doctor (Dr. Trussler) will release scars at the edges of Clay's mouth during this same time. To prevent Clay from having to go under anesthesia more than is necessary, Clay's doctor & ENT doctor will perform his next surgery/procedure simultaneously.
Our county livestock show is this week. Cody is old enough this year to show animals and is very excited about it. Carson & Cody will show their pigs this afternoon and their steers tomorrow. I will post some pictures of Clay's "new" neck when I get a chance to. Thanks again for all & Take Care!