Hello to all! Wow - June is here! I thought about the words of one of our boy's favorite hymns today: "Time is fleeting, flowers are falling, Life will soon be past; pause and ponder where thou goest: Time is flying fast." Cody and I are at the Ronald McDonald House tonight and Grandma is at the hospital with Clay. We will go to the hospital early in the morning and Cody will come back here with Grandma. Carson is in Olney with Chance because he had some activities this week. Clay had another active day and he is ready to leave the hospital. When I arrived early this morning, he continually asked "Where's my breakfast tray?" "Why is it taking so long?" "Did they forget?" "Mom, where is it?" We were both so excited when it arrived. He loves to lift the lid off his plate to see what he's having for each meal.
Clay will be sent home with his trach tube. We had many mixed emotions about this; but, we are just happy that we get to take him home. We will adjust to life with a trach tube and understand that it is not permanent. Chance and I will be taking a pediatric CPR class. Someone who knows (and works with) pediatric trach tubes will be sent to Clay's room to show us how to change it, clean it, and put it back in (if it comes out). I keep telling myself to not worry, worry, worry. We were told that Clay will have surgeries every month or two. His scars will have to have releases. In order to perform these surgeries, Clay will have to be under anesthesia. The scars have caused his neck to pull down and his mouth doesn't open wide; therefore, it would be extremely difficult to intubate him for surgeries. Having the trach tube leaves an open airway that the anesthesiologist can work with during his surgeries. I'm going to go to bed now that I have probably confused all of you. I'm so tired, I can't think much more. Thanks to all and good night.