Tuesday, June 2nd

Hello folks. DeeDee is having trouble making a wireless connection at the Ronald McDonald House so this is Dad stepping in from Olney. Clay had another good day. He seems to be on a roll and we are thankful for it. We expected a respiratory team today to downsize the trach. No luck they never arrived. The childlife specialist was available today and she let Cody spend some time with Clay in his room and in the play room. I'm sure the brothers enjoyed each others company. This afternoon Cody and Clay played some ball in the hall of the BACU. Physical therapy brought Clay a tricycle today and he road it up and down the hall and through an obstacle course that they had set up. After riding the trike she made him play a soccer type game where they kicked the ball back and forth. When Alicia the therapist left, Mom helped Clay back in bed and he said, "Whew, That was some serious therapy." He stayed in bed for a full 5 minutes and told his Mom he thought he would go ride that bike some more. Off he went. Dinner tonight was some hospital meatloaf. Clay told his mother that her meatloaf was number 1 but this was a close number 2 and he ate it up. He told his mother he was ready to use the toilet and he got up and went. He was pretty excited because he has not used one in over 100 days. He understands progress. Deidra feels like we are just biding our time. They want us to get the CPR class out of the way and then they should start seeing use on an outpatient basis. We do not know how many days each week will be dedicated to therapy. We appreciate all of the post and encouraging words. We are thankful for Clay's progress and every ones support. Good night.