Sunday, June 7, 2009
Sunday, June 7th
Hello. This is Chance. Clay had a decent night, the vomiting medication made him sleep. He slept until about 5:30 this morning before he awoke and started where he left off last night. He has not eaten anything since dinner on Friday night. We are trying to keep fluids and some of the kid essential protein down him. He had several episodes before lunch. He was exhausted and slept from 9:30 until 11:00. They came in and did an x-ray to see if anything looked unusual. He went to the tank at noon and set in the playroom for a bit afterwards but he is still not feeling very well. We are going to keep pushing fluids through the night tonight, and see if rest will help put him back on his feet. There are still plans for the discharge tomorrow but, we will have to see what the night and morning hold before the decision is made. We have been so encouraged by his recent progress that these days are hard. Deidra and I would like for him to have good days for the rest of his life. It seems he has had more burdens than some will ever face. We appreciate the thoughts and prayers of everyone and please remember him tonight. Thanks to all. I hope one of us post a good report tomorrow. Good Night.
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Oh what a shame! He was doing so good. Poor little guy - hope they find what is causing all this. We pray better days will soon start for Clay and know that if that happens it is better days for the whole family!
ReplyDeleteLots of Hugs
Royce and Sue Kesselring
Our hearts dropped when we read the last few posts - this recovery roller coaster be so hard on ya'll. We will be anxious for today's post and hope for his sake and yours that today was a better day. Sending lots of care, Morgan and Michelle
ReplyDeletePoor little sweetheart!! :( I am so sorry to read about the recent setbacks ... it's hard enough to be sick to your stomach, but especially on top of everything else Clay is dealing with. :( I'm saying lots of extra prayers that they'll be able to get this sickness under control. It was so nice to meet some of your family members last week. Cody is just a darling and I know that Clay is very blessed to have such a wonderful, loving, & supportive family during these unfair, trying times. Sending lots of love & prayers for healing & peace. Katie Crosbie
ReplyDeletewe too are sad to read of clay's recent setbacks. I hope that by the time you read this he is feeling better. Bless his sweet heart, we will be praying hard for this little guy and for both of you, Chance and Dee Dee.
ReplyDeleteTake care, The Southerland Family
Hang in there! This is just another hill on a long ride - this too shall pass. Clay, you are one AMAZING young man. We are so proud of how strong you are! I talked to my best friend this evening. She has been following the blog since I told her about Clay. Her 5 year old daughter prays for him every night. How precious to think of all the lives Clay has touched! God has a plan in every step of life. Love you all! Sleep well! And we will pray that you go home tomorrow!
ReplyDeleteDear Fites, My love and my prayers are with you. I will be in Abilene visiting Marty's family and David's who are also visiting. I will be praying that when I get back I have some really good reports to catch up on. I love you guys and I know this is all going to turn out all right. I know it doesn't look like it right this minute...but we know God is still on the throne and is in control of it all. Love you much, Carolyn
ReplyDeleteChance i know this is so disheartening and adds a lot of stress since it is so close to his discharge....BUT step back and look at the big picture...look how far you have come and the last two days are small set backs...we are all praying and pulling for you...be encouraged and press on!!
ReplyDeleteWe love your family!!
Ron Fisher
I know that they probably don't want you to put heat on Clay because of the grafts and such, but if nothing else works you might try just placing your hand right below his rib cage kind of in the front and see if the warmth of your hand can relax his stomach muscles. They might give you a heated blanket or towel to place just right across the top of his abdomen. Also I know that he likes milk a lot but you might just try and see if he can eat his food with plain water and have the milk later. Milk products can make a lot of acid. I know that you all are probably trying everything and you have the bests doctors and nurses down there, but sometimes it is hard to figure it out until you just hit upon the right thing. Nexium for acid reflux has made a huge difference in my life. Last year when I had my surgeries, I had to take a lot of pain meds and they tore up my stomach. Trying not to throw up was something that I had to really work at. I wish that they would find something to give him or something that was causing the vomiting. I know that you all are probably so exhausted. We are praying for Clay. I know how hard it is to have to vomit a whole bunch. It is miserable. God Bless.
ReplyDeleteOne more thing and I wouldn't post this for just anyone, but Clay is worth it. I can't belch or burp. I don't know if it is a result because they cut my throat when they did the trach thing or what. Anyway, I have learned to cough really hard and force out a huge belch if I feel naseous. I know that is disgusting, however it keeps me from throwing up. It is kind of the same principal like when you burp a baby to get all the air out so that they don't barf their food up. Since he is a little boy, I'm thinking that he has probably at least tried before to belch, burp or something along those lines just for fun. If he used to be able to burp, see if he can still do it since they did the trach. If he is naseous, you might see if he can let a huge burp or belch out and get the pressure off his little tummy as opposed to vomiting. That might also help clear his airway so that he doesn't feel like there is something in his trach. God Bless
ReplyDeleteI can't imagine what you must all be feeling. I have been praying for you a bunch today. I have been sick and that has made me think of him even more! All I could think was that I was glad that this happened before he was discharged and not after. I will be praying that his vomiting stops, he is fine and back to "normal" tomorrow. My heart is in a strange place wanting you to be discharged and not wanting you to be discharged. I know that is probably how you feel too. I will pray His will is done! Love you all! Missy
ReplyDeleteMatthew 18:20.
ReplyDelete"For where two or three are gathered together in my name, there am I in the midst of them."
Adding our prayers with others for fast healing, and restful sleep for Clay and the whole family.
Night!
Jeanne and Gary Snyder
Our 4 year old boy prays for Clay in such a sweet sober way that it always touches my heart - Yesterday in mtg. Dana spoke of Clay which was also very touching - This last week I spoke with my cousin in OR & she mentioned Clay... he is a special boy who has touched so many around the world. We pray you will have strength & your hearts will be encouraged today. Thinking of you-
ReplyDeleteAndrea & family
We want to hug you ALL!!! It is hard to think positively when you are so worried about your little guy, but I have a very strong feeling in my heart that your guy will overcome and I can tell by his spirit that he will rally and will soon be home with you. We continue to pray for ALL of you and we know the Lord will comfort and protect. HUGS AND PRAYERS FROM NEBRASKA!!!
ReplyDeleteBrian, Vicki, Evan and Emily Schmer
Thinking of you, along with so many others. How we wish we could take it all away! May today be better. Big Hugs to all of you!
ReplyDelete