Hello to all! What a stormy night and morning we had here in Dallas. Hope all of you in this area made it through the storms okay. Clay finally had a bowel movement this morning, but he's still vomiting. We had asked about Miralax, but he cannot keep anything down so this was not given. Some have asked if it there could be damage to his vagus nerve and the attending doctor said that there is no damage to this nerve. As a matter of fact, there is (and was) NO internal damage caused from the fire. His potassium numbers were low, so they are giving this through his IV. They are also giving him Reglan and Amitriptyline.
A team from Children's Hospital will come get Clay at 9:15 in the morning. They are going to do a G.I. test. I will follow them over and will be able to be in the room with him. I changed Clay's trach tube ties today after his bath. With a doctor by my side, we take his trach tube out for a few minutes each day. He gets so anxious and stressed when he realizes that his trach tube is out. He cries and motions for us to put it back in and then vomits. We have done this for the past three days, so that I get used to changing it when we are at home. Also, the doctor wants to show Clay that he CAN breathe without it. He can breathe through his mouth and nose if he will stay calm. The attending doctor visited with me about this issue yesterday. Clay has become so accustomed to his trach tube (4 months) and he thinks that he cannot breathe without it. I have come to see and understand that his anxiety is not caused by having the trach tube in. He becomes anxious when his trach tube is taken out or when it is plugged with secretions.
Clay walked with his Physical therapist today and spent about 15 min. in the playroom. He had to have two feed tubes put in this afternoon. The nurse pushed the first one through his nostril and then had to pull it out after the x-ray revealed that it was curled in his stomach. A second one was then put in. Clay has gagged and vomited more frequently since. Also, he began to cough more secretions through his trach tube. He has not had many secretions, so we do not know why this has caused more. I feel for him and wish I could take it away.
We will see what the test shows in the morning. Thanks again for all your help and encouragement.
A verse of one of our hymns has been on my mind the past few days: "He leads us and by faith we follow with hearts united to His will; His heart will plan His hand deliver and show to us He's leading still..."