Hello to all, it's Joy (Deidra's mom). I am going to type the blog tonight because our last visit was emotionally upsetting. Chance is at home with the boys. He put them to bed and needs to sleep himself. He is leaving the house at 3:00 am to be here in time for the 6:00 am visit. Granny (Jenae's mother-in-law) is at the house too. She will get the boys ready for school. Clay is second case for surgery in the morning. The doctors are planning to take the homograft off of his face and place a product called "Integra" on his face. This will be on his face for at least 17 days and then they will place autografts (own skin) over this. I will have Chance and Deidra explain this tomorrow. They might graft the back of the head also. Once they have Clay under the O.R. lights, they will have a better idea of what needs to be done.
Clay walked during the 2:00 pm visit. He did not want to get out of bed and walk. When he heard the Physical therapists outside his room, he began to cry and shake his head. Clay does not like to get out of his comfortable position. We had to remind him again how needful the therapies are. The occupational therapist made him some mouth stretchers, and a new splint for his right hand to position the fingers differently.
During the last visit of the day, Clay began to cough up mucus through his trache. After coughing some he began to throw up and we were covering his trache opening and trying to keep it clean. It is hard to tell if he is breathing out of his nose or mouth or the trachea tube. It is unnerving to have that happen. It was hard to leave tonight! The words of that hymn come to mind, "What I have no power over, I will leave in Jesus' hands"! We find SO MUCH coming our way that is out of our hands! We are so thankful we can trust in our heavenly Father.