Hello dear family & friends! Did you wear your green today......or did you get pinched? :-) We did not even think about it until we arrived at the hospital & most of the nurses and therapists were wearing green and tried to pinch us.
Today seemed to be a tiresome day for Clay. He has not been able to keep any foods down. He does have a feed tube; although, the "new" foods introduced through his mouth have come back up. I would estimate that he has had less than a tablespoon of liquids (juice & milk) on his stomach today and it still does not set well with him. He seems to have a lot of phlegm in his throat; in turn, this seems to trigger his gag reflex. This is just what I think. :-) When we tell him what is on his food tray, he just mouths "water, water." It breaks my heart when I have to tell him that they will not let him have water. He does get a few ice chips each day. We were told that we could bring some baby foods to see how he likes them. We are going to try to find some organic baby foods tomorrow.
Carson and Cody were allowed to go into Clay's room today. Cody has been wanting to read Clay a book, and finally got his chance. His brothers read him several books during the 2:00 visit. Clay was sad during this visiting hour. He would have loved to be able to go with his brothers. The occupational therapist and physical therapist said that he did a wonderful job today working with them. He walked again and helped put a small puzzle together. We did not get to see this today, but were told about it. The doctors told us that Clay is the first case for surgery in the morning. They are going to do work on his face. Dad will be here early in the morning. We will be able to see Clay before surgery. We are going to head to bed and say our prayers. Good night and thanks so much again!
With all our heart,
Chance, Deidra, & boys