Wednesday, April 15

Hello to all. Clay got to sit in my lap again this morning, after his little walk. He doesn't like to get out of bed to walk. We tell him that he is exercising the muscles in his legs and tell him how strong he is. With the thick dressing over his head, the trachea tube, and a stiff neck it is hard for him to lift his head when he walks. While he was sitting on my lap, he began to cough and then was sick at his stomach. We were right there to help him and sooth him. Occupational therapy made a new cast for his right hand. The purpose of the cast is to help bend and stretch his little fingers. They changed the dressing on his face today. It is usually changed around 9:30am every other day. Today is was changed at 2:00pm - during visiting time. Clay and Kermit both had to have their face dressing changed. They did Kermit's at 1:00pm and did Clay's afterwards. We were not able to visit Clay from 2:00-3:00 because of this. This was the first time that we have had to miss a visit since we've been here. Clay is heavily sedated before they change the face dressing; therefore, he was sleeping during the last two visits of the day. There is an area of concern on the back of Clay's head that they noticed during the dressing change. For this reason, the dressing will be changed again tomorrow. We'll know more tomorrow and possibly have an idea of when Clay's next surgery will be. Thanks & hugs to all!