Sunday, March 15, 2009

Sunday March 15th

Hello again. Clay had a pretty good day. He was much more awake and aware of his surroundings. He was even awake when we went in at 6:00 this morning for our early visit. He had a visit from the doctors this morning right after dressing change and the put in a central I.V. in his groin area. The nurse explained that this would be more comfortable for Clay and reduce the amount of times he would have to be stuck with a needle this week. Apparently after continually placing I.V. s in the hands, arms , and legs it gets much more difficult to hit the veins and they put in the central line to give them a rest. They also came in tonight and indicated that Clay had reached another milestone of sorts. He is to be placed on a standardized sleep/wake cycle. This means they will not be doing dressing changes or any procedures through the night that might interrupt his nights sleep. I am sure he will be happy to have this normalcy as soon as his body adjusts. Mom and I discovered the one disadvantage to him being awake and aware was that he could more easily break our hearts. When our visiting hours were over we would let him know we were going to step outside. His bottom lip would start to stick out followed by tears and we would have to go right back in and give him a pep talk. In the last visit this evening his mother and aunt were giving him some ice chips. They try not to give to many. He looked up at them and held up the index finger on his right hand and mouthed the word more. Of course after that he could have probably talked them out of the whole cup. Today seemed like progress to us. Thanks for all of the prayers, visits ,and encouragements.

9 comments:

  1. My heart is breaking right along with you! I will pray that God will ease his sadness. Can you tape yourselves reading to him so that even though you can't be in there, it seems like you are? Just a thought. Loving you through prayer!! Missy and family

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  2. Dear Fites,

    WE continue to hold all of you up in prayer each day. It was wonderful to read about Clay's improvement. Thank you so much for keeping us informed on this journey you are enduring now. We Care!!

    Butch and Carol Willis

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  3. So glad for each bit of news you share w/ us. Our thoughts continue to be often w/ y'all. We heard today some about experiences, and being willing for them & being willing for the result of them. God can use each experience for our good. Our prayers are w/ you. Love, Susie

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  4. Hope tomorrow brings more progres and good news. I can't imagine how hard it is to leave him each time for you as well as Clay. Hopefully he will soon move to the Accute Care Ward. There you will be able to stay will him more. Mainly it will mean he has improved more. Take care and continue to be strong.
    Laurie

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  5. From California: First thing is that I need to let you know that Jane and Jerry Hill live in our house in back and they were heartbroken when they heard about this. They wanted me to send their love!

    Like the others my heart breaks right with you also. When it is one of your children I know that words cannot even express your feelings. Thank you so much for what you have been sharing! Our love and prayers are with you always. The Costons

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  6. Yes - it is easy to let this little guy - and all the progress he has made - break our hearts. It would be hard not to give him "more" ice chips, and stay longer, just looking at his pleading, teary eyes. Our computer was down this weekend, so we didn't get the daily blogs and we missed them. We do hope today (Monday) brings another big step for removing the feeding tube. May God's love and strength be with you all - Love, Dawn & Pam

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  7. Thank you so much for taking the time to provide us with daily updates! My heart goes out to each of you. Many, many people are praying for Clay and all the friends and family surrounding him. May God's peace and grace continue to surround you!

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  8. When we heard of this tragedy happening to your family my husband and I immediately started praying for you and your precious little Clay- I have a 3 year old and can not even imagine what you are going through, but we praise the Lord that He will be faithful to you giving you the grace that you need during this time. I know we are not close but I will be talking to the Shannon's and asking them if there is ANYTHING that the Shaw's can do for you. You are in our prayers and may the Lord's amazing grace be your strength!

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  9. Chance, I don't know if you will remember me from high school, but as soon as I heard about your precious boy, I've been praying for him too. Know that he (and all of you) are covered in prayer. God has plans for all of you. I'm really glad to hear that he is having ice chips (I'm a speech path, too) that's really encouraging and should be comforting to him. Hopefully today brought more good news and he can eat something else as well. Praying for you all... hopefully rest for sweet Clay, too.

    Ginger "Howard" Castle

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