Monday, May 4, 2009

Monday, May 4th

Early post tonight. Clay had a busy and good day. He is starting to sleep all night and likes to sleep late in the mornings. Occupational therapy was ready to go to work at 8:00 and Clay was not fully awake yet. I helped wake him up. He sat on the edge of the bed for a bit and then played with monkeys in a barrel. When this was over he was awake and ready for more. He did several more exercises but my favorite was when he had to move his arms like a chicken. He gave it a good try and I clapped. The O.T. did work with the left hand and I received my first good look. Not pretty but hopefully functional. She had the rehab doctor come and visit with me about the options for this hand. Speech therapy showed up next and Clay really took this opportunity to show off. I always knew that talking was his strong suite. They capped his trach and he said several words and counted to 10 twice. The most exciting part was when he asked to have the cap placed back on and told me, "I want macaroni." Needless to say I went all over the hospital to find him some. After speech left he was ready for another trip to the play room, but we told him he would have to wait until he had walked. He was not very excited by this prospect, but walked to the window and then back past his room and down to Kermit's. As soon as he returned to his room and set down in his chair he forced air over his trach and said playroom. Off we went. After all the activities he was ready for his bed. Arne and I settled him in and he found some good cartoons. At the last visit he had a dinner tray. He was willing to try everything but nothing taste good yet. I am headed back for the 7:30 to say good night and Deidra and Grandma are headed this way to take over here. Carson , Cody and I will try to hold down the fort in Olney until we can return this weekend. Thanks to all and good night.

16 comments:

  1. Chance, WOW sounds like things are going well. I plan on coming up to Parkland this week. I have afew crads for both Clay and Kermit and some goodies too. You all remian in our prayers and thnak you for the post!
    your friend,
    Jamie

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  3. As I read the post this evening I couldn't help but laugh out loud!! What kid doesn't like macaroni! ;-) It sure is a favorite in our house, too! So wonderful to hear of his renewed excitement, determination, and appetite returning. What a trooper he is! Keep it up, buddy! E-hugs!
    Love your friends,
    Jay, Shauna, Lane, and Bryce Vallery

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  4. That's such great news! The little trooper has a lot of courage and the spark is returning! Best wishes from your friends in NH! Kent & Sharon Chappell

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  5. What great news! Sounds like ALL of our prayers are being answered! I bet you will NEVER forget the words "I want macaroni" in all of your life! How precious!! I have a strange feeling that DeeDee will be bringing some tasty macaroni when she comes! Hope he is getting some Wii time in and please tell him how proud we all are of the great work he is doing! Love to you all! Missy and family

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  6. “Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.”
    What a great post to raise prayers of Thanksgiving!!!

    Keep up the good work, Fite Family

    Prayers for you from the Snyders

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  7. This post is absolutely so exciting and awesome! You know, once he really starts to talk, you will have your work cut out for you. But he is starting to really show he's all boy! We pray for more advances in God's timing! Love you all, Dawn & Pam

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  8. Yea!!!!!! We're excited, too!! His little body is healing...he'll soon be running!!! How exciting that after he was done walking, he wanted to go to the playroom!!! Lots of cheers going up!!! Keep up the good work, Clay!!

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  9. Rusty a.k.a. Thud gets his Megargel Megaplex this Thursday. He wants Clay to come out there and play when he gets home. Rusty thinks they can figure out how to play ball. He mostly just wants him to come and see what kind of adventures they can get into. Also he made Clay a picture of a rocketship that we will mail to you at RMH. Dee Dee, Rusty put some Hershey's kisses in a bag for "Clay's mama" to send to you. Rusty was alternating between petting the dog and wiping his nose while he was bagging your kisses. I accidently threw the candy away so that is why it won't be in the package. Rusty prays for Clay everynight. God Bless

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  11. Dear Clay,
    YOU ARE OUR HERO, BIG BUDDY!!!!!

    TODAY I WILL HAVE A BIG SMILE ON MY FACE ALL DAY LONG. I CAN'T WAIT TO HEAR WHAT YOU DO NEXT!!

    LOVE AND HUGS FROM RENA!!

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  12. The update sounds good, I know it brings a sigh of relief when you see him wanting to do things on his own. Yea for Clay. B&E

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  13. I am soo happy to hear the Wonderful Blessings for Precious Clay! Sounds like he is getting his Spirit back! We love ya'll and are praying all the time!

    Swen, Jess, and girls

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  14. How Wonderful! THings are starting to look up! It is about time you guys had some good news.

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