Tuesday, May 26th

Hello everyone. Clay had a restless night and I finally let him get out of bed to sleep in my lap for the last hour. He was determined to pull the covers over his head all night. At 5:00 a.m. the night nurse announced that he was on the schedule at Children's for a 10:00 test procedure. This changed some of our plans. I stayed in Dallas with Grandma to make sure I was there when he went over to the other hospital for the test. Deidra left Olney as soon as the boys were on the bus and she made it to Parkland in time to run up six flights of stairs and ride over with all of us before the test. The team from Children's were great. Dr. Johnson did the procedure and was pleased with what he saw of Clay's upper airways. He said Clay is going to have to start exercising his mouth and get it stretched out. It was to tight for them to open and they had to run the scope in through Clay's nose. They finished the test quickly. He was returned to Parkland, and as soon as he started to wake up he went to the tank for a bath. Mom was allowed to go in with him and I left Dallas heading back to Olney. I will check in with DD after Cody's baseball game and add any additional details. More later, Thanks. Cody played his last machine pitch game of the season. DeeDee is having trouble getting her car started. Clay is not worried about either of the aforementioned. He walked unassisted to and from the playroom this afternoon. He was very hungry when dinner was served. There was a tomato sauce with some meatloaf and he ate all of the sauce and part of his meatloaf and indicated that he wanted Grandma to get more sauce. He had some small pieces of peaches and several drinks of apple juice. We love to see an appetite develop and we hope it all stays put. He is improving each day and we are thankful for all of the prayers. Thanks to everyone that keeps up with his progress.