Wednesday, May 20, 2009
Wednesday, May 20, 2009
This is Jenae writing the blog tonight. Well, we thought today was going to be a good day.....we were wrong!! It has been an emotionally draining day. First, Cody was sick and Chance had to have a friend come and get him to babysit him. He had a bad earache and it was all the way down into the ear canal. They caught it early so that's good! That explains his crying all through the night. As for Clay....there was going to be a huge step taken today and that was to take the trach out. When DeeDee and Grandma (our mom) went in to the 5:00 visit the nurses said they had a surprise. When DeeDee walked into the room Clay said, "Hi, Mom!". Those were some of the sweetest words to hear. The trach had been taken out and DeeDee and Grandma (our mom) got to visit with Clay. He was watching cartoons, was telling them about the cartoons and other things. A few complete sentences were said anyway. All the nurses had been in the room to hear Clay's voice. They all loved to hear it! Halfway through the visit (about 30 minutes into the visit) he started vomiting. He could not get his air, turned blue and still. Grandma (our mom) was holding his head. The nurse ran to get the respiratory therapist & DeeDee was running to get help. Help arrived immediately. They had to do an emergency trach (in the same spot they had taken it out at) and bag him to breath for him. There were 7 or 8 people around the bed. They had to pump the air in him. He is not on a machine, but he has another trach. When they went back for the last visit he was itching all over and was miserable. The nurse was giving him Benadryl and he was shaking his head no. He thought it might make him sick. He had it anyway because the straight cast on his left leg is making him itch. The nurses said they would keep a close watch over him tonight and we know that God will keep him. DeeDee just wants all to know that she is in no condition to write the blog tonight. One of the most difficult things to see is when your child stops breathing. Breath is life and we are thankful that we are still in the BICU at a time like this. Thanks a million to all the nurses, respiratory therapists and doctors that have helped us tonight. There is no way to thank you enough.
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Oh - yes we are all thinking of you and so glad again we have a Heavenly Father who is a God of all comfort. Thanks for sharing this difficult experience with us...you will continue to be in our thoughts and prayers. Minnie from Wisconsin
ReplyDeleteSo sorry! I know this feels like a huge step backwards....I am praying you will all rest tonight and take two more steps forward tomorrow. Please know I am praying and feeling your worry and your pain. I will also pray that you can get those images out of your mind...so very sorry.
ReplyDeleteI love you all so much!
Lori
Praying for the whole family:
ReplyDelete2 Corinthians 1:3-4 (New International Version)
The God of All Comfort
3Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God.
Thank you Jenae for being willing to let those of us who follow the family's needs through this blog stay updated. It is at these points we need to ask the Lord to comfort each of you even more so.
Jeanne' and Gary
What a day you guys have had. It is a scary situation you went through today but please know that all will be better in the days ahead. Our prayers are with Clay so that he stays strong and full of energy in order to get through these tough times, whenever they do arise. Our prayers are with the whole family in knowing that God is with you all and is comforting Clay and holding him when times seem bad. We all hope and look forward to the day when you update us on the fact that Clay was moved out of ICU. What a great day that will be. We are all so proud of Clay in the accomplishments he has made so far and can't wait for the day he gets to come home. Please tell Clay Emma says hi and misses him. Take care of each other and know we are all saying an extra prayer for you guys tonight.
ReplyDeleteSteve, Paige and Emma
I am writing this with a heavy heart. I too am thankful you were still in the BICU with good nurses and fast response. Hopefully this is just a set back and all will go better from here on out. Just know we love you and will continue praying and trusting that God always knows best. Thank you Jenae, Love you all so much. Arlin and Karen
ReplyDeleteMy heart sank with you! BICU is the worst roller coaster, but in God's great kindness, Clay was in the exact place he needed to be. The staff at Parkland are awesome. Hope you rest tonight, though I'm sure that will be tough. We're praying for you all.
ReplyDeleteMel
So sorry to read about the day you had today and all that you went through. Thinking of you so much tonight with prayers and much care. Thankful that God is especially near you through each step of this journey.
ReplyDeleteThinking of you as you have the hard days.
ReplyDeleteLove and Hugs,
Elseners
My thoughts & prayers continue to be w/ you all so much. Love & care, Susie
ReplyDeleteI can't even imagine what it would be like to see that happen to my child, however I still believe that Clay is going to be just fine. I do kind of think there may be a few times like today when things go way bad, but I believe God will always pull him through. I pray that somehow you get some sleep tonight, eventhough I know that if you do it will probably only be because you passed out from exhaustion. I wonder if maybe he was talking too much because he may not have the lung capacity to talk a whole bunch if he has a lot of mucus. If you run out of air, you can start choking and gagging or get airway spasms, also he may not be able to clear the vomit so well out of his throat yet. As scary as today was, he will probably be totally fine tomorrow. I've been blue before and they did an emergency trach on me to bag me, however I was sedated at the time so thank goodness I didn't really know what was up. When they close his trach next time, he will be fine. But when they do close his trach, make sure that he doesn't start having chest pains because if he got air in his chest that hurts really bad. If he got air in his chest today during all this he may be sore tomorrow but it goes away in a couple of days or faster. Find comfort in that when something went wrong, everyone was right there to save him. Clay is in pretty much the best place in the world to have a medical crisis. He is being cared for by the best of the best and I'm sure they are watching him closely all the time, but especially right now. I pray that something really good happens tomorrow so that today's memory is wiped out as much as possible. God Bless you and keep you all.
ReplyDeleteWell...I stayed up late tonight, and I guess it is because I am on "night duty" again! I can't imagine the range of emotions poor DeeDee and Grandma went through today as they heard precious words and then they were throwing up precious prayers to God to save their baby.(and of course for Dad too as he wasn't there for either) That had to be tough. I will be praying throughout the night and expecting to hear great things tomorrow! I will be praying for poor Cody as he is needing his Mama now too. Tough spot for poor Mama!Thanks so much for keeping us updated even when it is so hard. Love to Clay and all of his family! Missy
ReplyDeleteI am so so sorry about all that happened today. I also cannot imagine seeing that happen to one of my children or grandchildren!! My heart is heavy tonight also and I too hope you can get rested a little before tomorrow.
ReplyDeleteLots of love and mega hugs for you all.
Praying always........
Rena
Pomuffin always has such a good word of encouragement and it is good to hear of others who have gone ahead of Clay and come out on the other side. That gives you hope and comfort. My heart sank with Mel's as I read this report from Jenae. It is good you and Chance are surrounded by friends and family to lift your arms up when they get weary. I love you and I'm up with Missy tonight. I couldn't sleep and then remembered I hadn't read Clay's blog today. My prayers are going up for both Clay and Cody. I pray for peace and rest for you all and I'm in agreement with all the others about your peace and rest tonight. God was there and is standing watch al through the night with healing in His hands. All is well. I agree also with Lori that God will erase that horrible memory. God is with you. Much love and prayers, Carolyn
ReplyDeleteMost of us cannot imagine watching the life drain for our babies! DeeDee & Joy, may God give you strength, comfort and peace. We pray there are more good days ahead that will erase this picture in your minds. We are praying, too for Cody and hope his earache goes away quickly. Bless you all and we send our love, Dawn & Pam
ReplyDeletePlease know that we are still praying for all of you in Happy!
ReplyDeletepraying and thinking of you today...praying for new strength for the entire family!
ReplyDeleteall of our thoughts and prayers are with you always.
ReplyDeleteI've been thinking so much about you all. I know you probably had a terrible worry filled night and are totally exhausted today. I'm wondering if maybe because Clay's neck is so stiff that might have something to do with all the vomiting and choking. After my first brain surgery, I couldn't swallow very good and my neck was really stiff. I used to choke on my pills and it was really scary, but I learned how to dislodge the pills by coughing really really hard. Before they put this last shunt in, I would get stuff caught in my throat and throw up all the time. I have asthma pretty bad so I can a lot of congestion sometimes and also I tend to panic. Once I start choking, I can't breath sometimes until I throw up and get out whatever it was that was in there. I sometimes get scared when I'm throwing up during those times cause you can't really breath and vomit at the same time. Randy is always just telling me to calm down and that really helps because you have to make yourself be calm. Clay has had a lot of drainage lately. His neck is really stiff and he is probably scared to death. Anytime his airway is compromised he is going to be blue, and if he is blue, then he won't be moving. Yes, if he stays that way, he will die but he isn't going to stay that way. He is surrounded by folks who are going to clear his airway and restore it. You may ask the doctor if maybe he thought Clay could cough really really hard and get that stuff up. If stuff might be getting stuck in his throat, he may have to learn how to clear his own airway a little himself. Yesterday probably won't ever happen again, but if it ever does, I'm thinking that everyone will get his airway cleared and restored before he is blue. Also since he knew enough to be afraid to take the next medicine, sounds like he still has all his brain cells. No matter what happens each day, you never die until God is ready to take you. I really think that he is going to be okay, but there are going to be some extremely tough times getting back to where he was. I would probably be a total mess today if I had went through what you went through yesterday. Everyone made it through it all. God Bless
ReplyDeleteDear Fite's,
ReplyDeleteWe continue to read the updates, and are keeping you all in our thoughts and prayers especially as it gets closer to summer. I can only imagine how awesome it was to hear sweet Clay's voice, and pray that you will all hear much more of that very soon. We will pray for strength and comfort for you all, maybe one step back means that three steps forward are coming shortly!
McClendon's
We are so sorry to read about Clay's ordeal yesterday. Thank goodness for good days that you can be lifted up and gain some strength. I can't imagaine all that you all have been through, just keep trusting in the God we serve. Be true to Him and He will keep you. B&E
ReplyDeleteMy heart sank as I read this post, but please know that everyone is still praying for you guys. I know today had to be horrible for DeeDee and Clay, but please remember God has a PLAN for Clay! Yesterday was an obstacle to overcome, but I pray today will be rejoicing! I am praying that Cody will feel better too!
ReplyDeleteThe Woods Family, Quanah
Praying for your family.
ReplyDeleteY'all are such a wonderful example to us of "trust"....taking each moment as it comes, coping and finding strength from Above to face it. Remember #817-937-7511 is the cell number we use. We do pray for you, Marilynn F.
ReplyDeleteDay by day you are proving the Lord's keeping power, and we are inspired. It touched my heart to pray with some little children one night and know dear Clay is always in their prayers. May you continue to know the Comforter near. We are just a phone call away. Our love, Rachel P.
I have tried to leave a comment several times today, but no words seem to say what we felt when we read your post. We can't imagine Joy and Deedee and Clay, all so happy with Clay talking, then in an emergency situation with Clay not breathing the next moment. It makes us cry to think of what yesterday must have been like for you all. It must have been impossibly hard to leave him last night. We hope today was a better day. We hope Chance and the boys will be down for the weekend. Sending thoughts and love, Morgan and Michelle
ReplyDeleteOh what a SCARY Time for you Dear folks!!!
ReplyDeleteYou are a real little Fiter tho' Clay and we know you are going to be a WINNER!!!!!
Love you All LOTS!! Marvin & Bonnie