Tuesday, May 26, 2009

Tuesday, May 26th

Hello everyone. Clay had a restless night and I finally let him get out of bed to sleep in my lap for the last hour. He was determined to pull the covers over his head all night. At 5:00 a.m. the night nurse announced that he was on the schedule at Children's for a 10:00 test procedure. This changed some of our plans. I stayed in Dallas with Grandma to make sure I was there when he went over to the other hospital for the test. Deidra left Olney as soon as the boys were on the bus and she made it to Parkland in time to run up six flights of stairs and ride over with all of us before the test. The team from Children's were great. Dr. Johnson did the procedure and was pleased with what he saw of Clay's upper airways. He said Clay is going to have to start exercising his mouth and get it stretched out. It was to tight for them to open and they had to run the scope in through Clay's nose. They finished the test quickly. He was returned to Parkland, and as soon as he started to wake up he went to the tank for a bath. Mom was allowed to go in with him and I left Dallas heading back to Olney. I will check in with DD after Cody's baseball game and add any additional details. More later, Thanks. Cody played his last machine pitch game of the season. DeeDee is having trouble getting her car started. Clay is not worried about either of the aforementioned. He walked unassisted to and from the playroom this afternoon. He was very hungry when dinner was served. There was a tomato sauce with some meatloaf and he ate all of the sauce and part of his meatloaf and indicated that he wanted Grandma to get more sauce. He had some small pieces of peaches and several drinks of apple juice. We love to see an appetite develop and we hope it all stays put. He is improving each day and we are thankful for all of the prayers. Thanks to everyone that keeps up with his progress.

17 comments:

  1. What wonderful news!!!! We continue to pray for the wonderful healing power of the Lord. It seems as if Clay if making progress by leaps and bounds. Praise God!

    Butch and Carol Willis Graham, TX

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  2. It's amazing the progress that little guy has made. We continue to pray for his recovery.

    Autumn MacLeod
    Ingleside, TX

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  3. Clay's progress is so exciting and encouraing to our family!! We love the "tank" idea of a bath. Sounds just like down on the farm in the horse tank...or swimming pool as it turns into around here!
    Our prayers and thoughts are with the whole family.
    The Pittmans

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  4. I love to hear of his wonderful progress too! I know it makes you jump for joy to see him eating meatloaf and walk unassisted! God is good!! I will pray tonight is more restful! I awoke at 3:30am with a very big burden that Clay needed prayer, so I immediately started praying. I do hope tonight will go better.Please tell Cody and Carson that they have not been forgotten in our house! We are proud of them as I know this has been difficult on them as well! I will keep the car in my prayers! ;o) Love you all, Missy

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  5. Hello Fite Family:

    Hope the storms/hail/rain have not added to any more concerns....you have plenty without! Wow, I am impressed that Clay will continue to eat with as much as he's gone through, Way 2 go Clay!

    I hope Cody's game went well for him. It shows what a great family you have to work together to get everyone where they need to be so that things can continue to be as normal as possible. Kudos to all of you!

    Is the OT able to do any Myofascial release techniques with Clay yet? I had worked with an OT in the past who was able to help several students we share gain some additional movement and reductions of scarring with this approarch.

    I am sure the speech path and the OT/PT will work together to get the best range of motion possible with Clay's whole body, including his mouth.

    Thinking of each of you and praying for the Peace throughout the night.

    The Snyder's

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  6. It was so good to talk with you DeeDee today. You are truly an amazing person. Clay did great again today and I think your wish to come home is getting closer. God continues to take care of all of you. When we walk with Christ step by step through each crisis,we will see him do miraculous work of transforming,restoring and healing. “Hear my cry, O God; Attend to my prayer. From the end of the earth I will cry to you, When my heart is overwhelmed; Lead me to the rock that is higher than I. For you have been a shelter for me, a strong tower from the enemy. I will abide in your tabernacle forever; I will trust in the shelter of your wings. Psalm 61:1-4. This scripture made me think of all of you.
    Love you all!

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  7. WOW!! Yeah for Clay!

    With all of our love and prayers,

    Chris, Bambi, Mia and Ryder Barrett

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  8. Growing boys love to eat, glad to hear Clay is getting to have some real food. Progress is in little steps and we believe Clay is making those.
    Your strength will forever be remembered.
    Love and hugs,
    Elseners

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  9. Amazing how keeping up with his progress has become a part of our evening! :) Before bedtime you check on Clay's day...or first thing in the morning if it's not posted yet. :) Just know he and you all are in our thoughts and prayers each and every day!! Renita and family

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  10. What great news!! Clay is definitely our hero! We love all of you!
    Kelly, Reno, Alyssa and Morgan

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  11. WE ARE SO HAPPY ABOUT THE INPROVEMENT. GOOD FOR YOU CLAY. LIKE RENITA SAID, WE ALWAYS CHECK ON LITTLE CLAY BEFORE WE HEAD FOR BED EACH NIGHT, LOOKING FOR GOOD NEW. SO THANKFULL IT IS GOOD TONIGHT.. WAY TO GO CLAY .. THINKING OF YOU ALL, AND YOU KNOW YOU'RE IN OUR PRAYERS DAILY.. S & J Lewis

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  12. Wonderful news about the eating and the walking! I am wondering if Clay is restless because he is so glad to have his family spending the night with him that he is wondering all night long if you are going to leave him. Just a mama thinking out loud here. I am also thankful about the good report on Clay's airways.
    God bless all three sweet boys.

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  13. That was great news that Clay got out of the BICU and that he is doing well. It was also nice to hear that Kermit was able to go home. Maybe soon Clay will also be able to go home. Won't that be wonderful.

    Always good to get the latest report.
    Don Carlson
    Winnipeg MB Canada

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  14. Ever Exciting to read of your GREAT progress--by Leaps and Bounds!!! And keep up the Good work eating and walking etc...
    Before long you'll be going home like your little friend Kermit!! LOL Marvin & Bonnie

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  15. So glad to hear of such a great day!!! God is certainly in control! We are still praying for you all daily.

    Tony & Leigh Pollock
    and Kids

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  16. Such great news about clay! we are sooooo happy his appetite is improving and hoping it stays that way.
    I know you all are exhausted, and you are wonderful about keeping us posted...thank you!
    Like Renita said, checking on clay's progress is part of our day and know that he and you are in our thoughts and prayers each and every day.
    the Southerland's

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  17. Way to go Clay! Good appetite - building muscle and strength - what progress. We are pleased with what's happening and we pray for more success and big steps. Love you guys, Dawn & Pam

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